Quality of life of Brazilian families who have children with Fragile X syndrome: a descriptive study-Reference-Cited by-同舟云学术

Quality of life of Brazilian families who have children with Fragile X syndrome: a descriptive study

Published:2023-08-18 Issue:4 Volume:14 Page:407-418
ISSN:1868-6001
Container-title:Journal of Community Genetics
language:en
Short-container-title:J Community Genet

Author:

dos Santos Thamires Rosa^ORCID,Carlucci Nicoly Stefani Sevalho^ORCID,de Avó Lucimar Retto da Silva^ORCID,Barbato Ingrid Tremel^ORCID,Pinto Louise Lapagesse de Camargo^ORCID,Pilotto Rui Fernando^ORCID,Germano Carla Maria Ramos^ORCID,Melo Débora Gusmão^ORCID

Funder

Fundação de Amparo à Pesquisa do Estado de São Paulo

Coordenação de Aperfeiçoamento de Pessoal de Nível Superior

Conselho Nacional de Desenvolvimento Científico e Tecnológico

Publisher

Springer Science and Business Media LLC

Subject

Genetics (clinical),Public Health, Environmental and Occupational Health,Epidemiology

Link

https://link.springer.com/content/pdf/10.1007/s12687-023-00660-0.pdf

Reference55 articles.

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2. Bailey DB, Raspa M, Bishop E, Mitra D, Martin S, Wheeler A, Sacco P (2012) Health and Economic Consequences of Fragile X Syndrome for Caregivers. J Dev Behav Pediatr 33(9):705–712. https://doi.org/10.1097/dbp.0b013e318272dcbc

3. Boehm TL, Carter EW (2019) Family quality of life and its correlates among parents of children and adults with intellectual disability. Am J Intellect Dev Disabil 124(2):99–115. https://doi.org/10.1352/1944-7558-124.2.99

4. Boehm TL, Carter EW, Taylor JL (2015) Family quality of life during the transition to adulthood for individuals with intellectual disability and/or autism spectrum disorders. Am J Intellect Dev Disabil 120(5):395–411. https://doi.org/10.1352/1944-7558-120.5.395

5. Borilli MC, Germano CMR, de Avó LRS, Pilotto RF, Melo DG (2022) Family quality of life among families who have children with mild intellectual disability associated with mild autism spectrum disorder. Arq Neuropsiquiatr 80(4):360–367. https://doi.org/10.1590/0004-282x-anp-2020-0537