Healthcare utilization and the quality of life of children and adolescents with sickle cell disease
Author:
Affiliation:
1. School of Social Work Howard University Washington District of Columbia
Publisher
Wiley
Subject
Oncology,Hematology,Pediatrics, Perinatology and Child Health
Link
https://onlinelibrary.wiley.com/doi/pdf/10.1002/pbc.29685
Reference47 articles.
1. Sickle cell vaso-occlusion: The dialectic between red cells and white cells
2. Prenatal and newborn screening for hemoglobinopathies
3. Patient‐reported outcomes in sickle cell disease and association with clinical and psychosocial factors: Report from the sickle cell disease implementation consortium
4. Sleep disturbance, depression and pain in adults with sickle cell disease
5. Emergency Department Utilization for Patients Living With Sickle Cell Disease: Psychosocial Predictors of Health Care Behaviors
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1. The relationship between cumulative risk and health‐related quality of life in youth with sickle cell disease: Moderating effects of secondary control engagement coping;Pediatric Blood & Cancer;2024-03-15
2. The Burden of Sickle Cell Disease on Children and Their Caregivers: Caregiver Reports of Children’s Health-Related Quality of Life and School Experiences, Caregiver Burden, and Their Association with Frequency of Vaso-Occlusive Crises;Patient Related Outcome Measures;2023-11
3. Conceptualizing lifer versus destination patients for optimized care delivery;BMC Health Services Research;2023-11-01
4. Impact of hospitalization for vaso‐occlusive crisis on health‐related quality of life in children with sickle cell disease;Pediatric Blood & Cancer;2023-09-25
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