Education program for caregivers in congenital central hypoventilation syndrome: Initiation and experience families-Reference-Cited by-同舟云学术

Education program for caregivers in congenital central hypoventilation syndrome: Initiation and experience families

Published:2024-08-16 Issue: Volume: Page:
ISSN:8755-6863
Container-title:Pediatric Pulmonology
language:en
Short-container-title:Pediatric Pulmonology

Author:

Micaelli Delphine¹,Ghelab Zina²,Delclaux Christophe³^ORCID,Artu‐Dumont Caroline⁴,Patout Maxime⁵^ORCID,Le Bourgeois Fleur¹,Dauger Stéphane¹,Bokov Plamen³,Dudoignon Benjamin³^ORCID

Affiliation:

1. Paediatric Intensive Care Unit Université de Paris‐Cité, Robert Debré Hospital, AP‐HP Paris France

2. Division of Paediatric Otolaryngology, AP‐HP Université de Paris‐Cité, Robert Debré Hospital Paris France

3. Centre de Référence Constitutif Maladies respiratoires rares, Hypoventilations alvéolaires rares, Syndrome d'Ondine, Physiology and Paediatric sleep Unit, Robert Debré Hospital, INSERM NeuroDiderot, AP‐HP Université de Paris‐Cité Paris France

4. Therapeutic Education Unit, Robert Debré Hospital, AP‐HP Paris France

5. Centre de Référence Constitutif Maladies Pulmonaires Rares de l'Adulte Orphalung, Service des Pathologies du Sommeil, Hôpital Pitié‐Salpêtrière, AP‐HP, Hypoventilations Centrales, Syndrome d'Ondine Sorbonne Université Paris France

Publisher

Wiley

Link

https://onlinelibrary.wiley.com/doi/pdf/10.1002/ppul.27217

Reference6 articles.

1. Guidelines for diagnosis and management of congenital central hypoventilation syndrome

2. Parent education programs for children assisted by invasive mechanical ventilation: A scoping review

3. An Official American Thoracic Society Clinical Practice Guideline: Pediatric Chronic Home Invasive Ventilation

4. ERS Statement on pediatric long term noninvasive respiratory support

5. Development and validation of a novel informational booklet for pediatric long‐term ventilation decision support