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Evaluation of participant recruitment methods to a rare disease online registry

  • Published:2014-04-03 Issue:7 Volume:164 Page:1686-1694
  • ISSN:1552-4825
  • Container-title:American Journal of Medical Genetics Part A
  • language:en
  • Short-container-title:Am. J. Med. Genet.

Author:

Johnson Kimberly J.123ORCID,Mueller Nancy L.1,Williams Katherine1,Gutmann David H.4

Affiliation:

1. Brown School; Washington University; St. Louis Missouri

2. Department of Pediatrics; School of Medicine; Washington University; St. Louis Missouri

3. Siteman Cancer Center; Washington University; St. Louis Missouri

4. Department of Neurology; School of Medicine; Washington University; St. Louis Missouri

Funder

American Cancer Society Institutional Research Grant

Alex's Lemonade Stand Foundation for Childhood Cancer

St. Louis Children's Hospital Foundation

Washington University Institute of Clinical and Translational Sciences

National Center for Advancing Translational Sciences (NCATS)

National Institutes of Health

Publisher

Wiley

Subject

Genetics(clinical),Genetics

Reference38 articles.

1. Evaluation of methods and costs associated with recruiting healthy women volunteers to a study of ovulation;Battistella;J Womens Health (Larchmt),2010

2. Using information technology and social networking for recruitment of research participants: Experience from an exploratory study of pediatric klinefelter syndrome;Close;J Med Internet Res,2013

3. Neurological complications of neurofibromatosis type 1 in adulthood;Creange;Brain,1999

4. Facebook Facebook reports fourth quarter and full year 2012 results. Facebook http://investor.fb.com/releasedetail.cfm?ReleaseID=736911
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