The Importance of Engaging Children in Research Decision‐Making: A Preliminary Mixed‐Methods Study

Author:

Paquette Erin Talati1,Palac Hannah2,Bair Elizabeth3,Schultz Blake4,Stenquist Nicole5,Joffe Steven6,Shukla Avani7

Affiliation:

1. Assistant professor in the Department of Pediatrics at Northwestern University and is an attending physician in the Division of Critical Care at the Ann & Robert H. Lurie Children's Hospital of Chicago and, during data collection, was a pediatric critical care fellow in the Division of Pediatric Critical Care at Boston Children's Hospital

2. Statistician in the Biostatistics Research Core at Northwestern University during participation

3. Was a research associate at the Dana Farber Cancer Institute during participation

4. Orthopedic resident at NYU Langone Medical Center and, during participation, was a research associate at Boston Children's Hospital

5. Was a research associate at Boston Children's Hospital during participation

6. The interim chair in the Department of Medical Ethics and Health Policy and the Founders professor of medical ethics and health policy at the University of Pennsylvania Perelman School of Medicine

7. Clinical research associate in the Division of Critical Care at the Ann & Robert H. Lurie Children's Hospital of Chicago

Publisher

Wiley

Subject

Health (social science)

Reference22 articles.

1. 45 C.F.R. 46 Subpart D—Additional Protections for Children Involved as Subjects in Research.

2. Involving children with cancer in decision-making about research participation

3. Pediatric Oncology Professionals’ Perceptions of Information Needs of Adolescent Patients With Cancer

4. Children's Capacity to Consent to Participation in Psychological Research: Empirical Findings,” Child Development 62 (1991): 1100–9; Broome et al., “Children in Research”; Geller et al., “Informed Consent for Enrolling Minors in Genetic Susceptibility Research”; Susman, E. J., L. D. Dorn, and J. C. Fletcher, “Reasoning about Illness in Ill and Healthy Children and Adolescents: Cognitive and Emotional Developmental Aspects;Abramovitch R.;Journal of Developmental & Behavioral Pediatrics,1987

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