Identifying a conceptual shift in child and adolescent-reported treatment decision making: “Having a say, as I need at this time”

Author:

Kelly Katherine Patterson1,Mowbray Catriona2,Pyke-Grimm Kimberly3,Hinds Pamela S.14

Affiliation:

1. Department of Nursing Research and Quality Outcomes; Children's National Health System; Washington District of Columbia

2. Center for Cancer and Blood Disorders; Children's National Health System; Washington District of Columbia

3. Center for Nursing Excellence; Bass Center for Childhood Cancer and Blood Diseases; Lucile Packard Children's Hospital Stanford; Palo Alto California

4. Department of Nursing Research and Quality Outcomes; Center for Translational Science; Children's National Health System; Department of Pediatrics; George Washington University; Washington District of Columbia

Funder

Alex's Lemonade Stand Foundation for Childhood Cancer

Publisher

Wiley

Subject

Oncology,Hematology,Pediatrics, Perinatology and Child Health

Reference31 articles.

1. The Private Worlds of Dying Children

2. Informed consent, parental permission, and assent in pediatric practice. Committee on Bioethics, American Academy of Pediatrics;Bioethics Co.;Pediatrics,1995

3. Involving children with cancer in decision-making about research participation;Joffe;J Pediatr,2006

4. SIOP Working Committee on psychosocial issues in pediatric oncology: guidelines for communication of the diagnosis;Masera;Med Ped Oncol,1997

5. United Nations Convention on the Rights of the Child. 1989 http://www.ohchr.org/en/professionalinterest/pages/crc.aspx

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