Our data, our society, our health: A vision for inclusive and transparent health data science in the United Kingdom and beyond

Author:

Ford Elizabeth1,Boyd Andy2,Bowles Juliana K.F.3,Havard Alys4,Aldridge Robert W.5,Curcin Vasa6,Greiver Michelle7,Harron Katie8,Katikireddi Vittal9,Rodgers Sarah E.1011,Sperrin Matthew12

Affiliation:

1. Department of Primary Care and Public Health Brighton and Sussex Medical School Brighton UK

2. ALSPAC, Population Health Sciences, Bristol Medical School University of Bristol Bristol UK

3. School of Computer Science University of St Andrews St Andrews UK

4. Centre for Big Data Research in Health University of New South Wales Sydney Australia

5. Institute of Health Informatics University College London London UK

6. School of Population and Environmental Health Sciences, Faculty of Life Sciences and Medicine King's College London UK

7. Department of Family and Community Medicine University of Toronto, North York General Hospital Toronto Canada

8. Great Ormond Street Institute of Child Health UCL London UK

9. MRC/CSO Social and Public Health Sciences Unit University of Glasgow Glasgow UK

10. Health Data Research UK Swansea University Swansea UK

11. Public Health and Policy University of Liverpool Liverpool UK

12. School of Health Sciences, Faculty of Biology, Medicine and Health University of Manchester Manchester UK

Publisher

Wiley

Subject

Health Information Management,Public Health, Environmental and Occupational Health,Health Informatics

Reference94 articles.

1. HM Government.Strength and Opportunity 2017: The landscape of the medical technology and biopharmaceutical sectors in the UK. The Office of Life Sciences London UK. Available fromhttps://assets.publishing.service.gov.uk/government/uploads/system/uploads/attachment_data/file/707072/strength‐and‐opportunity‐2017‐bioscience‐technology.pdf.

2. NHS Digital.Data insights and statistics. Information and technology for better health and care. Sept2018. Available fromhttps://digital.nhs.uk/binaries/content/assets/website‐assets/data‐and‐information/dis/data‐insights‐and‐statistics‐download.pdf.

3. A position statement on population data science;McGrail KJK;Int J Popul Data Sci,2018

4. “Giving something back”: A systematic review and ethical enquiry of public opinions on the use of patient data for research in the United Kingdom and the Republic of Ireland

5. BowesL EvansJ NathwaniT BirkinG BoydA HolmesC ThomasL JonesS.Understanding progression into higher education for disadvantaged and under‐represented groups.2015. Available from:https://dera.ioe.ac.uk/24682/1/BIS‐15‐462‐understanding‐progression‐into‐higher‐education‐final.pdf.

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