Confidential genetic testing and electronic health records: A survey of current practices among Huntington disease testing centers

Author:

Eno Celeste C.1ORCID,Barton Stacey K.2ORCID,Dorrani Naghmeh1,Cederbaum Stephen D.1ORCID,Deignan Joshua L.1,Grody Wayne W.1

Affiliation:

1. University of California Los Angeles Los Angeles CA USA

2. Washington University St. Louis MO USA

Publisher

Wiley

Subject

Genetics (clinical),Genetics,Molecular Biology

Reference34 articles.

1. American Recovery and Reinvestment Act of 2009. (2009).P.L. 111–5 as signed by the President on February 17 2009 : Law explanation and analysis.Chicago IL:CCH.

2. American College of Medical Genetics/American Society of Human Genetics Huntington Disease Genetic Testing Working Group. (1998).Laboratory guidelines for huntington disease genetic testing. The American Journal of Human Genetics 62(5) 1243–1247.

3. Erratum: 22 Years of predictive testing for Huntington’s disease: the experience of the UK Huntington’s Prediction Consortium

4. Points to Consider: Ethical, Legal, and Psychosocial Implications of Genetic Testing in Children and Adolescents

5. CLIA program and HIPAA privacy rule; patients' access to test reports. Final rule;Centers for Medicare & Medicaid Services (CMS), H. H. S., Centers for Disease Control and Prevention (CDC), H. H. S., & Office for Civil Rights (OCR), H. H. S;Fed Regist,2014

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