Genetic Data Governance in Japanese Hospitals
Author:
Funder
Japan Society for the Promotion of Science Grants-in-Aid for Scientific Research
Publisher
Springer Science and Business Media LLC
Subject
Health Policy,Philosophy,Health (social science),Issues, ethics and legal aspects
Link
https://link.springer.com/content/pdf/10.1007/s41649-023-00242-9.pdf
Reference44 articles.
1. Abbing, H., and UNESCO. 2004. International declaration on human genetic data. European Journal of Health Law 11: 93–107. https://doi.org/10.1163/157180904323042399.
2. Adachi, T., K. Kawamura, Y. Furusawa, Y. Nishizaki, N. Imanishi, S. Umehara, K. Izumi, and M. Suematsu. 2017. Japan’s initiative on rare and undiagnosed diseases (IRUD): Towards an end to the diagnostic odyssey. European Journal of Human Genetics. 25 (9): 1025–1028. https://doi.org/10.1038/ejhg.2017.106.
3. Annas, G.J. 1993. Privacy rules for DNA databanks. Protecting coded “future diaries.” Journal of the American Medical Association 207: 2346–2350.
4. Black, K.J., S.K. Barton, and J.S. Perlmutter. 2021. Pre-symptomatic testing and confidentiality in the age of the electronic medical record. Journal of Neuropsychiatry and Clinical Neurosciences 33: 80–83. https://doi.org/10.1176/appi.neuropsych.20030068.
5. Burke, W. 2004. Genetic testing in primary care. Annual Review of Genomics and Human Genetics 5: 1–14. https://doi.org/10.1146/annurev.genom.5.061903.180029.
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