Unmet needs in the transition to adulthood: 18- to 30-year-old people with hemophilia-Reference-Cited by-同舟云学术

Unmet needs in the transition to adulthood: 18- to 30-year-old people with hemophilia

Published:2015-11-30 Issue: Volume:90 Page:S17-S22
ISSN:0361-8609
Container-title:American Journal of Hematology
language:en
Short-container-title:Am. J. Hematol.

Author:

Quon Doris¹,Reding Mark²,Guelcher Chris³,Peltier Skye⁴,Witkop Michelle⁵,Cutter Susan⁶,Buranahirun Cathy⁷,Molter Don⁸,Jane Frey Mary⁹,Forsyth Angela¹⁰,Tran Duc Bobby¹¹,Curtis Randall¹²,Hiura Grant¹³,Levesque Justin¹⁴,de la Riva Debbie¹⁵,Compton Matthew¹⁶,Iyer Neeraj N.¹⁷,Holot Natalia¹⁷,Cooper David L.¹⁷

Affiliation:

1. Orthopaedic Hemophilia Treatment Center, Orthopaedic Institute for Children; Los Angeles California

2. University of Minnesota Medical Center; Minneapolis Minnesota

3. Children's National Health System; Washington, DC

4. Oregon Health & Science University; Portland Oregon

5. Munson Medical Center; Traverse City Michigan

6. Penn Comprehensive Hemophilia and Thrombosis Center, University of Pennsylvania Medical Center; Philadelphia Pennsylvania

7. Children's Hospital Los Angeles, Keck School of Medicine; University of Southern California; Los Angeles California

8. Indiana Hemophilia and Thrombosis Center; Indianapolis Indiana

9. Children's Hospital of Michigan; Detroit Michigan

10. BioRx; Mason Ohio

11. Emory University School of Medicine; Atlanta Georgia

12. Factor VIII Computing; Berkeley California

13. National Hemophilia Foundation; New York New York

14. FOLX; Portland Maine

15. Lone Star Chapter of the National Hemophilia Foundation; Houston Texas

16. Adult Patient, Compton Consulting LLC; Simi Valley California

17. Clinical Development; Medical and Regulatory Affairs, Novo Nordisk Inc; Plainsboro New Jersey

Publisher

Wiley

Subject

Hematology

Link

http://onlinelibrary.wiley.com/wol1/doi/10.1002/ajh.24219/fullpdf

Reference8 articles.

1. Compliance with treatment and understanding of own disease in patients with severe and moderate haemophilia;Lindvall;Haemophilia,2006

2. Growing up with hemophilia: Assessing teen's experiences and needs during transition to adult health care;Sterling;U Toronto Med J,2013

3. Haemophilia Experiences, Results and Opportunities (HERO) study: Influence of haemophilia on interpersonal relationships as reported by adults with haemophilia and parents of children with haemophilia;Cassis;Haemophilia,2014

4. The expanded family life cycle: Individual, family, and social perspectives;Carter;Allyn and Bacon,1999

Cited by 17 articles. 订阅此论文施引文献订阅此论文施引文献，注册后可以免费订阅5篇论文的施引文献，订阅后可以查看论文全部施引文献

1. Teenagers and Adolescents with Hemophilia–Need for a Specific Approach;Journal of Clinical Medicine;2024-08-29

2. Age‐based transitions of care: Where is the pharmacist?;JACCP: JOURNAL OF THE AMERICAN COLLEGE OF CLINICAL PHARMACY;2024-06

3. Current Status and Challenges in Delivering Comprehensive Care for Patients with Hemophilia;Journal of Blood Medicine;2023-12

4. Invisible bleeds: Lived experiences and barriers to care for men with hemophilia;Journal of Thrombosis and Haemostasis;2021-11-08

5. Hemophilia without prophylaxis: Assessment of joint range of motion and factor activity;Research and Practice in Thrombosis and Haemostasis;2020-07-06