Sharing health data: good intentions are not enough

Author:

Pisani Elizabeth1,AbouZahr Carla2

Affiliation:

1. aLondon School of Hygiene and Tropical Medicine, Keppel Street, WC1E 7HT, London, England.

2. bDepartment of Health Statistics and Informatics, World Health Organization, Geneva, Switzerland.

Publisher

WHO Press

Subject

Public Health, Environmental and Occupational Health

Reference32 articles.

1. Smith D, Carrano A. International large-scale sequencing meeting. Human Genome News 1996;7. Available from: http://www.ornl.gov/sci/techresources/Human_Genome/publicat/hgn/v7n6/19intern.shtml [accessed 26 February 2010].

2. Data sharing in genomics – re-shaping scientific practice.;Kaye;Nat Rev Genet,2009

3. The effects of excluding patients from the analysis in randomised controlled trials: meta-epidemiological study.;Nüesch;BMJ,2009

4. Missing data in randomized clinical trials for weight loss: scope of the problem, state of the field and performance of statistical methods.;Elobeid;PLoS ONE,2009

5. Lord P, MacDonald A, Sinnot R, Ecklund D, Westhead M, Jones A. Large-scale data sharing in the life sciences: data standards, incentives, barriers and funding models (The “Joint data standards study”). Glasgow & Edinburgh: National e-Science Centre; 2006. Available from: http://www.nesc.ac.uk/technical_papers/uk.html [accessed 26 February 2010].

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