Engaging Stakeholders in the Design and Conduct of Embedded Pragmatic Clinical Trials for Alzheimer’s Disease and Alzheimer’s Disease–Related Dementias

Author:

Harrison Jill1ORCID,Maslow Katie2,Tambor Ellen3,Phillips Louise4,Frank Lori5,Herndon Laurie6,Epstein‐Lubow Gary178

Affiliation:

1. Department of Health Services, Policy, and PracticeSchool of Public Health, Brown University Providence Rhode Island USA

2. The Gerontological Society of America Washington, DC USA

3. Center for Medical Technology Policy Baltimore Maryland USA

4. Person Living with DementiaNIA IMPACT Collaboratory Stakeholder Engagement Team USA

5. RAND Corporation Washington, DC USA

6. Hebrew SeniorLife Hinda and Arthur Marcus Institute for Aging Research Boston Massachusetts USA

7. Alpert Medical School of Brown University Providence Rhode Island USA

8. Butler Hospital Providence Rhode Island USA

Funder

National Institute on Aging

Publisher

Wiley

Subject

Geriatrics and Gerontology

Reference27 articles.

1. National Institute for Health Research.Patient and Public Involvement in Health and Social Care Research: A Handbook for Researchers. 2014.https://www.rds-yh.nihr.ac.uk/wp-content/uploads/2015/01/RDS_PPI-Handbook_2014-v8-FINAL-11.pdf. Accessed February 14 2020.

2. National Institute for Health Research.INVOLVE. Briefing Notes for Researchers: Involving the Public in NHS. Eastleigh UK: Public Health and Social Care Research; 2012.http://www.invo.org.uk/wp-content/uploads/2012/04/INVOLVEBriefingNotesApr2012.pdf. Accessed February 14 2020.

3. National Institute for Health Research.INVOLVE. NIHR‐Wide Learning and Development for Public Involvement: Working Group Report and Recommendations Eastleigh UK; 2015.https://www.invo.org.uk/wp-content/uploads/2016/03/FINAL-NIHR-LD-report-July-2015.pdf. Accessed February 14 2020.

4. Methods and impact of engagement in research, from theory to practice and back again: early findings from the Patient-Centered Outcomes Research Institute

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