Methods and impact of engagement in research, from theory to practice and back again: early findings from the Patient-Centered Outcomes Research Institute

Author:

Forsythe Laura,Heckert Andrea,Margolis Mary Kay,Schrandt Suzanne,Frank LoriORCID

Funder

Patient-Centered Outcomes Research Institute

Publisher

Springer Science and Business Media LLC

Subject

Public Health, Environmental and Occupational Health

Reference31 articles.

1. Reeve, B. B., Wyrwich, K. W., Wu, A. W., Velikova, G., Terwee, C. B., Snyder, C. F., et al. (2013). ISOQOL recommends minimum standards for patient-reported outcome measures used in patient-centered outcomes and comparative effectiveness research. Quality of Life Research, 22(8), 1889–1905.

2. Kirwan, J. R., & Hewlett, S. (2007). Patient perspective: Reasons and methods for measuring fatigue in rheumatoid arthritis. Journal of Rheumatology, 34(5), 1171–1173.

3. Food and Drug Administration (FDA). (2009). Guidance for industry on patient-reported outcome measures: Use in medical product development to support labeling claims, federal register (Vol. 74, pp. 65132–65133). Washington, DC: U.S. Department of Health and Human Services.

4. Charlton, J. I. (1998). Nothing about us without us: Disability oppression and empowerment. Berkeley: University of California Press.

5. Viswanathan, M., Ammerman, A., Eng, E., Garlehner, G., Lohr, K. N., Griffith, D., Rhodes, S., Samuel-Hodge, C., Maty, S., Lux, L., Webb, L., Sutton, S. F., Swinson, T., Jackman, A., & Whitener, L. (2004). Community-based participatory research: Assessing the evidence. Evidence Report Technology Assessment (Summ)(99), 1–8.

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