How do Australian mental health services use easy read to make information accessible for people with intellectual disability?

Author:

Newman Bronwyn1,Fisher Karen R.2ORCID,Trollor Julian3

Affiliation:

1. Centre for Health Systems and Safety Research (CHSSR) Australian Institute of Health Innovation Macquarie University Sydney New South Wales Australia

2. Social Policy Research Centre University of New South Wales Sydney New South Wales Australia

3. Department of Disability and Neuropsychiatry University of New South Wales Sydney New South Wales Australia

Abstract

AbstractIntroductionAccess to health information is a right for all people. Easy read information is one strategy used to make information accessible for people with intellectual disability. This research explored how easy read is used and the ways accessible information can address access barriers, with a focus on Australian mental health services.MethodsSemi‐structured interviews were conducted across four sites to explore how easy read was used. Participants (n = 49) were easy read users, health practitioners and staff from services providing mental health care in New South Wales, Australia. An integrated health literacy framework was used to analyse data.ResultsMost mental health staff did not use easy read or other accessible information, and did not consistently offer people with intellectual disability opportunities to understand, appraise and apply health information. This investigation confirmed the limited availability of accessible information resources, including easy read, and the importance of relationships of support when accessing health information.ConclusionPeople with intellectual disability did not routinely have access to mental health information. Substantial change is required to address this disparity.ImplicationsAgency policy and processes require change to support staff practices that uphold the right to information. Inclusive practices that incorporate using easy read in health contexts, including mental health, are needed to facilitate change.

Funder

National Health and Medical Research Council

Publisher

Wiley

Subject

Developmental and Educational Psychology,Education

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