Communicating about haemophilia within the family: the importance of context and of experience
Author:
Publisher
Wiley
Subject
Genetics(clinical),Hematology,General Medicine
Link
http://onlinelibrary.wiley.com/wol1/doi/10.1111/j.1365-2516.2006.01417.x/fullpdf
Reference23 articles.
1. To tell or not to tell: barriers and facilitators in family communication about genetic risk
2. ‘It's their blood not mine’: Who's responsible for (not) telling relatives about genetic risk?
3. A framework for genetic service provision for haemophilia and other inherited bleeding disorders
4. Parents Sharing Information With Their Children About Genetic Conditions
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1. The strategies of parents who tell their daughters about the possibility of being a haemophilia carrier;The Journal of Haemophilia Practice;2023-01-01
2. A study of dedicated haemophilia carrier clinics in the United States: Prevalence, services offered and barriers to development;Haemophilia;2020-06-14
3. Collaborative Game Design with Children with Hemophilia as a Tool for Infuencing Opinions about Physical Activity at School;Psychology in Russia: State of the Art;2019
4. Communication with children about sickle cell disease: A qualitative study of parent experience;British Journal of Health Psychology;2018-06-09
5. “It was a lot Tougher than I Thought It would be”. A Qualitative Study on the Changing Nature of Being a Hemophilia Carrier;Journal of Genetic Counseling;2017-05-26
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