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A study of dedicated haemophilia carrier clinics in the United States: Prevalence, services offered and barriers to development

  • Published:2020-06-14 Issue:5 Volume:26 Page:
  • ISSN:1351-8216
  • Container-title:Haemophilia
  • language:en
  • Short-container-title:Haemophilia

Author:

Marshall Ariela L.12ORCID,Recht Michael34,Sridharan Meera12,Nichols William L.12,Ashrani Aneel A.12,Fischer Karen M.5,Miles Moses4,Riedel Angela4,Pruthi Rajiv K.12ORCID

Affiliation:

1. Division of Hematology Department of Internal Medicine Comprehensive Hemophilia Center Mayo Clinic Rochester MN USA

2. Division of Hematopathology Department of Laboratory Medicine and Pathology Mayo Clinic Rochester MN USA

3. The Hemophilia Center Oregon Health & Science University Portland OR USA

4. American Thrombosis and Hemostasis Network Rochester NY USA

5. Department of Biostatistics and Medical Informatics Mayo Clinic Rochester MN USA

Publisher

Wiley

Subject

Genetics(clinical),Hematology,General Medicine

Reference10 articles.

1. Bleeding in carriers of hemophilia

2. A cross-sectional study of bleeding phenotype in haemophilia A carriers

3. Haemophilia A carriers experience reduced health-related quality of life

4. HighamJM O'BrienPMS ShawRM.Pictorial blood loss assessment chart (PBAC).World Federation of Hemophilia.https://elearning.wfh.org/resource/pictorial‐blood‐loss‐assessment‐chart/. Accessed March 23 2020

5. Surveillance of female patients with inherited bleeding disorders in United States Haemophilia Treatment Centres
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