Evaluating outcome of prophylaxis in haemophilia: objective and self-reported instruments should be combined

Author:

Fischer K.12,Nijdam A.1,Holmström M.34,Petrini P.35,Ljung R.67,van der Schouw Y. T.2,Berntorp E.78

Affiliation:

1. Van Creveldkliniek; Department of Hematology; University Medical Center Utrecht; Utrecht the Netherlands

2. Julius Center for Health Sciences and Primary Care; University Medical Center Utrecht; Utrecht the Netherlands

3. Coagulation Unit; Karolinska University Hospital; Stockholm Sweden

4. Department of Medicine; Karolinska Institute; Stockholm Sweden

5. Department of Paediatrics; Karolinska University Hospital; Stockholm Sweden

6. Department of Paediatrics; Lund University; Malmö Sweden

7. Malmö centre for Thrombosis and Haemostasis; Skåne University Hospital; Malmö Sweden

8. Department of Clinical Sciences; Lund University; Skåne University Hospital; Malmö Sweden

Funder

Bayer Haemophilia Award

Novo Nordisk

Publisher

Wiley

Subject

Genetics (clinical),Hematology,General Medicine

Reference35 articles.

1. Haemophilia in Sweden VII. Incidence, treatment and prophylaxis of arthropathy and other musculo-skeletal manifestations of haemophilia A and B;Ahlberg;Acta Orthop Scand,1965

2. Clotting factor concentrates given to prevent bleeding and bleeding-related complications in people with hemophilia A or B;Iorio;Cochrane Database Syst Rev,2011

3. Hemophilic arthropathy. Current concepts of pathogenesis and management;Arnold;J Bone Jt Surg,1977

4. Radiologic evaluation of prophylaxis in severe haemophilia;Pettersson;Acta Paediatr Scand,1981

5. Prophylaxis: musculoskeletal evaluation;Gilbert;Semin Hematol,1993

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