‘This battle, between your gut feeling and your mind. Try to find the right balance’: Parental experiences of children with spinal muscular atrophy during COVID‐19 pandemic-Reference-Cited by-同舟云学术

‘This battle, between your gut feeling and your mind. Try to find the right balance’: Parental experiences of children with spinal muscular atrophy during COVID‐19 pandemic

Published:2022-04-26 Issue:6 Volume:48 Page:1062-1070
ISSN:0305-1862
Container-title:Child: Care, Health and Development
language:en
Short-container-title:Child

Author:

Oude Lansink Irene L. B.¹²,van Stam P. C. Carolien³,Schafrat Eline C. W. M.⁴,Mocking Manouk⁴,Prins S. Dido⁵,Beelen Anita²,Cuppen Inge⁶,van der Pol W. Ludo⁶,Gorter Jan Willem¹²⁷,Ketelaar Marjolijn²

Affiliation:

1. Department of Rehabilitation, Physical Therapy Science & Sports University Medical Center Utrecht, Wilhelmina Children's Hospital Utrecht The Netherlands

2. Center of Excellence for Rehabilitation Medicine, UMC Utrecht Brain Center University Medical Center Utrecht, and De Hoogstraat Rehabilitation Utrecht The Netherlands

3. Eleos Mental Health Care Institution Amersfoort The Netherlands

4. Department of Pediatric Psychology and Social Work University Medical Center Utrecht, Wilhelmina Children's Hospital Utrecht The Netherlands

5. Department of Psychiatry Tergooi Hospital Hilversum The Netherlands

6. Department of Neurology and Neurosurgery, UMC Utrecht Brain Center University Medical Center Utrecht, Utrecht University Utrecht The Netherlands

7. CanChild, Department of Pediatrics McMaster university Hamilton Ontario Canada

Publisher

Wiley

Subject

Public Health, Environmental and Occupational Health,Developmental and Educational Psychology,Pediatrics, Perinatology and Child Health

Link

https://onlinelibrary.wiley.com/doi/pdf/10.1111/cch.13014

Reference20 articles.

1. Arim R. Findlay L. &Kohen D.(2020).The impact of the COVID‐19 pandemic on Canadian families of children with disabilities. Data to Insights for a Better Canada Catalogue no. 45280001.https://www150.statcan.gc.ca/n1/pub/45-28-0001/2020001/article/00066-eng.htm

2. Thematic analysis revised;Braun V.;Journal of Chemical Information and Modeling,2019

3. Cacioppo M. Bouvier S. Bailly R. Houx L. Varengue R. Chatelin A. Vagnoni J. &Vuillerot C.(2020).Since January 2020 Elsevier has created a COVID‐19 resource centre with free information in English and Mandarin on the novel coronavirus COVID‐ 19. The COVID‐19 resource centre is hosted on Elsevier Connect the company' s public news and information. January.

4. Care in COVID: A qualitative analysis of the impact of COVID‐19 on the health and care of children and young people with severe physical neurodisability and their families

5. Informal home care providers: the forgotten health-care workers during the COVID-19 pandemic

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