A common data language for clinical research studies: the National Institute of Neurological Disorders and Stroke and American Academy for Cerebral Palsy and Developmental Medicine Cerebral Palsy Common Data Elements Version 1.0 recommendations

Author:

Schiariti Verónica12ORCID,Fowler Eileen3,Brandenburg Joline E4,Levey Eric5,Mcintyre Sarah6,Sukal‐Moulton Theresa7,Ramey Sharon L8,Rose Jessica9,Sienko Susan10,Stashinko Elaine11,Vogtle Laura12,Feldman Robin S13ORCID,Koenig James I14

Affiliation:

1. Division of Medical Sciences University of Victoria Victoria BC Canada

2. Department of Pediatrics University of British Columbia Vancouver BC Canada

3. University of California Los Angeles Los Angeles CA USA

4. Department of Physical Medicine and Rehabilitation Department of Pediatric and Adolescent Medicine Mayo Clinic Rochester MN USA

5. Health Services for Children with Special Needs, Inc. Washington DC USA

6. Cerebral Palsy Alliance University of Sydney Sydney NSW Australia

7. Department of Physical Therapy and Human Movement Sciences Feinberg School of Medicine Northwestern University Chicago IL USA

8. Virginia Tech Carilion Research Institute Virginia Polytechnic Institute Roanoke VA USA

9. Stanford University School of Medicine Stanford CA USA

10. Shriners Hospitals for Children Portland OR USA

11. Kennedy Krieger Institute Baltimore MD USA

12. University of Alabama at Birmingham Birmingham AL USA

13. The Emmes Corporation Rockville MD USA

14. National Institute of Neurological Disorders and Stroke National Institutes of Health Bethesda MD USA

Funder

National Institute of Neurological Disorders and Stroke

Publisher

Wiley

Subject

Neurology (clinical),Developmental Neuroscience,Pediatrics, Perinatology and Child Health

Reference83 articles.

1. National Institute of Neurological Disorders and Stroke Common Data Element Project – approach and methods

2. National Institute of Neurological Disorders and Stroke (NINDS).NINDS Common Data Elements. Available from:https://www.commondataelements.ninds.nih.gov/(accessed 22 December 2017).

3. A report: the definition and classification of cerebral palsy April 2006;Rosenbaum P;Dev Med Child Neurol Suppl,2007

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