Evidence of a disability paradox in patient‐reported outcomes in haemophilia-Reference-Cited by-同舟云学术

Evidence of a disability paradox in patient‐reported outcomes in haemophilia

Published:2021-02-17 Issue:2 Volume:27 Page:245-252
ISSN:1351-8216
Container-title:Haemophilia
language:en
Short-container-title:Haemophilia

Author:

O’Hara Jamie¹²,Martin Antony P.¹,Nugent Diane³,Witkop Michelle⁴^ORCID,Buckner Tyler W.⁵,Skinner Mark W.⁶⁷^ORCID,O’Mahony Brian⁸⁹,Mulhern Brendan¹⁰,Morgan George¹^ORCID,Li Nanxin¹¹,Sawyer Eileen K.¹¹

Affiliation:

1. HCD Economics Daresbury UK

2. Faculty of Health and Social Care University of Chester Chester UK

3. Department of Pediatrics and Division of Hematology at CHOC Children's Hospital Center for Inherited Blood Disorders Orange CA USA

4. National Hemophilia Foundation New York NY USA

5. Hemophilia and Thrombosis Center University of Colorado School of Medicine Aurora CO USA

6. Institute for Policy Advancement, Ltd Washington DC USA

7. McMaster University Hamilton ON Canada

8. Irish Haemophilia Society Dublin UK

9. Trinity College Dublin UK

10. Centre for Health Economics Research and Evaluation University of Technology Sydney Sydney NSW Australia

11. uniQure Inc Lexington MA USA

Publisher

Wiley

Subject

Genetics (clinical),Hematology,General Medicine

Link

https://onlinelibrary.wiley.com/doi/pdf/10.1111/hae.14278

Reference30 articles.

Interrelationship between depression, anxiety, pain, and treatment adherence in hemophilia: results from a US cross-sectional survey

2. Self-reported prevalence, description and management of pain in adults with haemophilia: methods, demographics and results from the Pain, Functional Impairment, and Quality of life (P-FiQ) study

3. Achieving the unimaginable: Health equity in haemophilia

4. Defining patient value in haemophilia care

5. Patient-centred value framework for haemophilia

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