Patient-centred value framework for haemophilia

Author:

O'Mahony B.1ORCID,Dolan G.2,Nugent D.3,Goodman C.4,

Affiliation:

1. Irish Haemophilia Society; Trinity College; Dublin Ireland

2. Guy’s and St Thomas’ NHS Trust; London UK

3. Children's Hospital of Orange County; University of California at Irvine; Irvine CA USA

4. The Lewin Group; Falls Church VA USA

Funder

Bayer HealthCare

Publisher

Wiley

Subject

Genetics (clinical),Hematology,General Medicine

Reference34 articles.

1. An evaluation framework for funding drugs for rare diseases;Winquist;Value Heal,2012

2. What is value in health care;Porter;N Engl J Med,2010

3. O'Mahony B Noone D Tolley K An Introduction to key concepts in health economics for hemophilia organizations http://www1.wfh.org/publication/files/pdf-1259.pdf

4. Costs of care in hemophilia and possible implications of health care reform;Johnson;Hematology,2011

5. World Federation of Hemophilia 95th WFH Global Forum on Research and Treatment Products for Bleeding Disorders http://www.wfh.org/en/globalforum

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