Patient-centred value framework for haemophilia
Author:
Affiliation:
1. Irish Haemophilia Society; Trinity College; Dublin Ireland
2. Guy’s and St Thomas’ NHS Trust; London UK
3. Children's Hospital of Orange County; University of California at Irvine; Irvine CA USA
4. The Lewin Group; Falls Church VA USA
Funder
Bayer HealthCare
Publisher
Wiley
Subject
Genetics (clinical),Hematology,General Medicine
Link
http://onlinelibrary.wiley.com/wol1/doi/10.1111/hae.13456/fullpdf
Reference34 articles.
1. An evaluation framework for funding drugs for rare diseases;Winquist;Value Heal,2012
2. What is value in health care;Porter;N Engl J Med,2010
3. O'Mahony B Noone D Tolley K An Introduction to key concepts in health economics for hemophilia organizations http://www1.wfh.org/publication/files/pdf-1259.pdf
4. Costs of care in hemophilia and possible implications of health care reform;Johnson;Hematology,2011
5. World Federation of Hemophilia 95th WFH Global Forum on Research and Treatment Products for Bleeding Disorders http://www.wfh.org/en/globalforum
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