Parent–child communication and timing of interventions are challenges in the Duchenne muscular dystrophy care-Reference-Cited by-同舟云学术

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Parent–child communication and timing of interventions are challenges in the Duchenne muscular dystrophy care

Published:2018-09-03 Issue:3 Volume:108 Page:535-540
ISSN:0803-5253
Container-title:Acta Paediatrica
language:en
Short-container-title:Acta Paediatr

Author:

Sætrang T¹²,Bjørk I T³,Capjon H²,Rasmussen M¹²^ORCID

Affiliation:

1. Department of Clinical Neurosciences for Children Oslo University Hospital Oslo Norway

2. Unit for Inborn and Hereditary Neuromuscular Disorders (EMAN) Department of Neurology Oslo University Hospital Oslo Norway

3. Department of Nursing Science University of Oslo Oslo Norway

Publisher

Wiley

Subject

General Medicine,Pediatrics, Perinatology and Child Health

Link

https://onlinelibrary.wiley.com/doi/pdf/10.1111/apa.14537

Reference25 articles.

1. Diagnosis and management of Duchenne muscular dystrophy, part 1: diagnosis, and pharmacological and psychosocial management

2. Neuropsychological and neurobehavioral functioning in Duchenne muscular dystrophy: A review

3. Quantifying the burden of caregiving in Duchenne muscular dystrophy

4. Depression in parents of children with duchenne muscular dystrophy

5. Parents' perspectives on coping with Duchenne muscular dystrophy

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1. Five Questions to Help Prompt End-of-Life Planning in Neuromuscular Disease;Seminars in Respiratory and Critical Care Medicine;2024-07-19

2. Systematic Review on Family Functioning in Families of Children With Rare Diseases;Papeles del Psicólogo - Psychologist Papers;2024

3. Hospital healthcare experiences of children and young people with life-threatening or life-shortening conditions, and their parents: scoping reviews and resultant conceptual frameworks;BMC Pediatrics;2023-07-17

4. End of Life in Boys and Young Men With Duchenne Muscular Dystrophy – The Perspective of Dying Men and Their Families: A Systematic Review and Thematic Synthesis of Qualitative Evidence;OMEGA - Journal of Death and Dying;2023-07-05

5. Evaluation of the Problems of Families in the Care of Children with Duchenne Muscular Dystrophy: A Qualitative Study;Journal of Nursology;2023-01-04

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