Using routine Haemophilia Joint Health Score for international comparisons of haemophilia outcome: standardization is needed

Author:

Nijdam A.1,Bladen M.2,Hubert N.2,Pettersson M.3,Bartels B.4,van der Net J.4,Liesner R.2,Petrini P.3,Kurnik K.5,Fischer K.16

Affiliation:

1. Van Creveldkliniek; Department of Hematology; University Medical Center; Utrecht The Netherlands

2. Heamophilia Center; Department of Haematology; Great Ormond Street Hospital for Children; London UK

3. Paediatric Department of Coagulation Disorders; Karolinska University Hospital; Stockholm Sweden

4. Child Development and Exercise Center; Wilhelmina Children's Hospital; University Medical Center; Utrecht The Netherlands

5. Dr. von Haunersches Children's Hospital; University of Munich; Munich Germany

6. Julius Center for Health Sciences and Primary Care; University Medical Center; Utrecht The Netherlands

Funder

Novo Nordisk

Publisher

Wiley

Subject

Genetics(clinical),Hematology,General Medicine

Reference22 articles.

1. Validation of a new pediatric joint scoring system from the International Hemophilia Prophylaxis Study Group: validity of the hemophilia joint health score;Feldman;Arthritis Care Res (Hoboken),2011

2. Hemophilia joint health score reliability study;Hilliard;Haemophilia,2006

3. Factors affecting the Haemophilia Joint Health Score in children with severe haemophilia;Bladen;Haemophilia,2013

4. Joint health and functional ability in children with haemophilia who receive intensive replacement therapy;Groen;Haemophilia,2011

5. Progression of haemophilic arthropathy in children: a Lithuanian-Danish comparative study;Saulyte Trakymiene;Haemophilia,2013

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