‘It's a 24/7 Deal’: Parents of adults with intellectual and developmental disabilities discuss natural supports

Abstract

AbstractBackgroundNatural supports are widely used by adults with intellectual and developmental disabilities. However, little research has been conducted on this topic. This study adds to the literature by examining the role of parents as natural supporters, other members of the natural support network, challenges families face as they secure natural supports, and advice parents have for other families.MethodTwenty‐three parents of adults with intellectual and developmental disabilities were interviewed. Data was analyzed using a constant comparative approach.ResultsFamily members and friends were key natural supporters. However, parents provided the bulk of support. A hesitation with asking others for support was a common barrier to building natural support networks. Parents encouraged others to connect with families with similar circumstances.ConclusionsTo ensure proper care for adults with intellectual and developmental disabilities, we must develop supports that meet family members' needs and identify ways to strengthen natural support networks.