Exploring young adults' experiences with food allergy during their teenage years: A practice research study

Author:

Egmose Britt1ORCID,Huniche Lotte2ORCID,Bindslev‐Jensen Carsten1ORCID,Nielsen Dorthe S.34ORCID,Mørtz Charlotte G.1ORCID

Affiliation:

1. Department of Dermatology and Allergy Centre, Odense Research Centre for Anaphylaxis (ORCA) Odense University Hospital and University of Southern Denmark Odense Denmark

2. Department of Psychology, The Faculty of Health Sciences University of Southern Denmark Odense Denmark

3. Geriatric Research Unit, Department of Clinical Research University of Southern Denmark Odense Denmark

4. Department of Geriatric Medicine Odense University Hospital Odense Denmark

Abstract

AbstractIntroductionSymptoms of anxiety, eating disorders and social isolation are prevalent among teenagers with food allergy compared to peers without. Treatment of teenagers with food allergy focus on preventing anaphylactic reactions, with little attention to promoting social and emotional well‐being. The aim of the study was to explore young adults' perspectives on everyday life with food allergy during their teenage years to improve future clinical practice.MethodsCritical psychological practice research. During a 2‐day camp the perspectives of 10 young adults (18–23 years) were explored through participant observation and informal interviews. Three follow up interviews were conducted. A co‐researcher group discussed preliminary results, clinical challenges and ways forward.ResultsBeing together with peers with food allergy was crucial, fostering belonging and normalisation. The shift in responsibility of managing the risk feels overwhelming and stressful during teen age. Self‐understanding was influenced when managing food allergy in social contexts, inducing feelings of burden and isolation. Acceptance and understanding from social relations became important for all participants, and they all underlined desire for being viewed as individuals rather than being defined by their allergy.ConclusionSupport from other peers with food allergy is crucial for the participants. Transition to independently managing risks introduces uncertainty and social constraints, affecting self‐understanding and interactions. Clinicians should prioritise peer support and empower teenagers in managing the risk and psychosocial challenges.

Publisher

Wiley

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