1. Dermatology Unit and Genodermatosis Unit, Genetics and Rare Diseases Research Division Bambino Gesù Children's Hospital, IRCCS Rome Italy
2. VASCERN VASCA and ERN‐Skin European Reference Centre Rome Italy
3. Digestive Endoscopy and Surgery Unit Bambino Gesù Children's Hospital, IRCCS Rome Italy
4. Pathology Unit Bambino Gesù Children's Hospital, IRCCS Rome Italy
5. Interventional Radiology Unit, Department of Imaging Bambino Gesù Children's Hospital, IRCCS Rome Italy
6. Artificial Nutrition Unit Bambino Gesù Children's Hospital, IRCCS Rome Italy