What, if anything, is specific about having a rare disorder? Patients’ judgements on being ill and being rare
Author:
Publisher
Wiley
Subject
Public Health, Environmental and Occupational Health
Link
http://onlinelibrary.wiley.com/wol1/doi/10.1111/j.1369-7625.2009.00552.x/fullpdf
Reference20 articles.
1. Rare diseases, drug development and AIDS: the impact of the orphan drug act;Arno;The Milbank Quarterly,1995
2. A journey of hope: lessons learned from studies on rare diseases and orphan drugs;Wästfelt;Journal of Internal Medicine,2006
3. Epidemiologische herausforderungen bei seltenen krankheiten;Rückinger;Bundesgesundheitsblatt, Gesundheitsforschung, Gesundheitsschutz,2008
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