Morally Problematic Situations Encountered by Adults Living With Rare Diseases-Reference-Cited by-同舟云学术

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Morally Problematic Situations Encountered by Adults Living With Rare Diseases

Published:2023-12-14 Issue: Volume: Page:1-14
ISSN:2329-4515
Container-title:AJOB Empirical Bioethics
language:en
Short-container-title:AJOB Empirical Bioethics

Author:

Quintal Ariane¹²³,Hotte Élissa¹³,Grenier Annie-Danielle³,Hébert Caroline³,Carreau Isabelle³,Berthiaume Yves³⁴,Racine Eric¹²³⁵

Affiliation:

1. Pragmatic Health Ethics Research Unit, Institut de recherches cliniques de Montréal, Montréal, Canada

2. Département de médecine sociale et préventive, Université de Montréal, Montréal, Canada

3. Ethics and Rare Diseases Working Group, Institut de recherches cliniques de Montréal, Montréal, Canada

4. Département de médecine, Université de Montréal, Montréal, Canada

5. Department of Medicine (Division of Experimental Medicine), Department of Neurology and Neurosurgery, McGill University, Montréal, Canada

Publisher

Informa UK Limited

Subject

Health Policy,Philosophy,Health (social science)

Link

https://www.tandfonline.com/doi/pdf/10.1080/23294515.2023.2274587

Reference44 articles.

1. L’intervention éthique en santé

2. Ethical aspects on rare diseases;Barrera L. A.;Rare Diseases Epidemiology,2010

3. Experienced fatigue in people with rare disorders: a scoping review on characteristics of existing research

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