Haemophilia management and treatment: An Italian survey on patients’, caregivers’ and clinicians’ point of view-Reference-Cited by-同舟云学术

Haemophilia management and treatment: An Italian survey on patients’, caregivers’ and clinicians’ point of view

Published:2022-02-08 Issue:2 Volume:28 Page:254-263
ISSN:1351-8216
Container-title:Haemophilia
language:en
Short-container-title:Haemophilia

Author:

Cortesi Paolo Angelo¹²,Rocino Angiola³,Preti Daniele⁴,Fragomeno Anna⁴,Cucuzza Francesco⁴,Ceresi Nicola⁴,Santoro Cristina⁵,Ferretti Antonietta⁵,Fornari Arianna¹,Antonazzo Ippazio Cosimo¹,Facchetti Rita¹,Cozzolino Paolo²,Biasoli Chiara⁶,Cassone Cristina⁴,Coppola Antonio⁷,Mantovani Lorenzo G.¹²

Affiliation:

1. Research Centre on Public Health (CESP) University of Milano‐Bicocca Monza Italy

2. IRCCS Multimedica Sesto San Giovanni Italy

3. UOC di Ematologia ‐ Centro Emofilia e Trombosi Ospedale del Mare ‐ ASL NA1 Napoli Italy

4. Italian Federation of Haemophilia Associations (FedEmo) Rome Italy

5. Hematology University Hospital Policlinico Umberto I Rome Italy

6. Hemophilia Center and Transfusion Department Hospital of Cesena Cesena Italy

7. Regional Reference Center for Inherited Bleeding Disorders University Hospital of Parma Parma Italy

Publisher

Wiley

Subject

Genetics (clinical),Hematology,General Medicine

Link

https://onlinelibrary.wiley.com/doi/pdf/10.1111/hae.14504

Reference29 articles.

1. Psychosocial aspects of haemophilia: a systematic review of methodologies and findings

2. Impact of hemophilia B on quality of life in affected men, women, and caregivers-Assessment of patient-reported outcomes in the B-HERO-S study

3. Evaluating the psychosocial impact of hemophilia B: the Bridging Hemophilia B Experiences, Results and Opportunities into Solutions (B‐HERO‐S) study;Jr SR;Eur J Haematol,2017

4. Haemophilia Experiences, Results and Opportunities (HERO) study: treatment-related characteristics of the population

5. Haemophilia Experiences, Results and Opportunities (HERO) Study: survey methodology and population demographics

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