Impact of hemophilia B on quality of life in affected men, women, and caregivers-Assessment of patient-reported outcomes in the B-HERO-S study-Reference-Cited by-同舟云学术

Impact of hemophilia B on quality of life in affected men, women, and caregivers-Assessment of patient-reported outcomes in the B-HERO-S study

Published:2018-04-11 Issue:6 Volume:100 Page:592-602
ISSN:0902-4441
Container-title:European Journal of Haematology
language:en
Short-container-title:Eur J Haematol

Author:

Buckner Tyler W.¹,Witkop Michelle²,Guelcher Christine³,Sidonio Robert⁴,Kessler Craig M.⁵,Clark David B.⁶,Owens Wendy⁷,Frick Neil⁸,Iyer Neeraj N.⁹,Cooper David L.⁹^ORCID

Affiliation:

1. University of Colorado School of Medicine; Aurora CO USA

2. Munson Medical Center; Traverse City MI USA

3. Children's National Health System; Washington DC USA

4. Emory University and Children's Healthcare of Atlanta; Atlanta GA USA

5. Georgetown University Hospital; Washington DC USA

6. The Coalition for Hemophilia B; New York NY USA

7. Hemophilia Federation of America; Washington DC USA

8. National Hemophilia Foundation; New York NY USA

9. Novo Nordisk Inc.; Plainsboro NJ USA

Funder

Novo Nordisk Inc.

Publisher

Wiley

Subject

Hematology,General Medicine

Link

http://onlinelibrary.wiley.com/wol1/doi/10.1111/ejh.13055/fullpdf

Reference37 articles.

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2. Hemophilic arthropathy;Luck;J Am Acad Orthop Surg,2004

3. Associations of quality of life, pain, and self-reported arthritis with age, employment, bleed rate, and utilization of hemophilia treatment center and health care provider services: results in adults with hemophilia in the HERO study;Forsyth;Patient Prefer Adherence,2015

4. Self-reported prevalence, description and management of pain in adults with haemophilia: methods, demographics and results from the Pain, Functional Impairment, and Quality of life (P-FiQ) study;Witkop;Haemophilia,2017

5. Effect of acute bleeding on daily quality of life assessments in patients with congenital hemophilia with inhibitors and their families: observations from the dosing observational study in hemophilia;Neufeld;Value Health,2012

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