Analysis of Mortality among Neonates and Children with Spina Bifida: An International Registry‐Based Study, 2001‐2012

Author:

Bakker Marian K.1ORCID,Kancherla Vijaya2,Canfield Mark A.3,Bermejo‐Sanchez Eva4,Cragan Janet D.5,Dastgiri Saeed6,De Walle Hermien E. K.1,Feldkamp Marcia L.7,Groisman Boris8,Gatt Miriam9,Hurtado‐Villa Paula10,Kallen Karin11,Landau Daniella12,Lelong Nathalie13,Lopez Camelo Jorge S.14,Martínez Laura15,Morgan Margery16,Mutchinick Osvaldo M.17,Nembhard Wendy N.18,Pierini Anna19,Rissmann Anke20,Sipek Antonin21,Szabova Elena22,Tagliabue Giovanna23,Wertelecki Wladimir24,Zarante Ignacio25,Mastroiacovo Pierpaolo26

Affiliation:

1. University of Groningen University Medical Center Groningen Department of GeneticsEurocat Northern Netherlands Groningen The Netherlands

2. Department of Epidemiology Emory University Rollins School of Public Health Atlanta GA USA

3. Birth Defects Epidemiology and Surveillance Branch Texas Department of State Health Services Austin TX US

4. ECEMC (Spanish Collaborative Study of Congenital Malformations) CIAC Instituto de Investigación de Enfermedades Raras (IIER) Instituto de Salud Carlos III Madrid Spain

5. Division of Congenital and Developmental Disorders National Center on Birth Defects and Development Disabilities Centers for Disease Control Atlanta GA USA

6. Health Services Management Research Centre Tabriz University of Medical Sciences Tabriz Iran

7. Department of Pediatrics University of Utah School of Medicine and the Utah Birth Defect Network Salt Lake City UT USA

8. National Network of Congenital Anomalies of Argentina (RENAC) National Center of Medical Genetics National Administration of Laboratories and Health Institutes (ANLIS) National Ministry of Health Buenos Aires Argentina

9. Malta Congenital Anomalies Registry Directorate for Health Information and Research Valetta Malta

10. Department of Basic Sciences of Health School of Health Pontificia Universidad Javeriana Cali Cali Colombia

11. National Board of Health and Welfare and University of Lund Stockholm Sweden

12. Department of Neonatology Soroka Medical Center Beer‐Sheva Israel

13. Inserm UMR 1153 Obstetrical Perinatal and Pediatric Epidemiology Research Team (Epopé) Center for Epidemiology and Statistics Sorbonne Paris Cité DHU Risks in Pregnancy Paris Descartes University Paris France

14. ECLAMC Center for Medical Education and Clinical Research (CEMIC‐CONICET) Buenos Aires Argentina

15. Genetics Department Hospital Universitario Dr Jose E. Gonzalez Universidad Autonóma de Nuevo León San Nicolás de los Garza Mexico

16. CARIS, The Congenital Anomaly Register for Wales Singleton Hospital Swansea UK

17. RYVEMCE Department of Genetics Instituto Nacional de Ciencias Médicas y Nutrición Salvador Zubirán Mexico City Mexico

18. Department of Epidemiology, Arkansas Center for Birth Defects Research and Prevention and Arkansas Reproductive Health Monitoring System Fay Boozman College of Public Health University of Arkansas for Medical Sciences Little Rock AR USA

19. Institute of Clinical Physiology National Research Council and Fondazione Toscana Gabriele Monasterio Tuscany Registry of Congenital Defects Pisa Italy

20. Malformation Monitoring Centre Saxony‐Anhalt Medical Faculty Otto‐von‐Guericke University Magdeburg Germany

21. Department of Medical Genetics Thomayer Hospital Prague Czech Republic

22. Slovak Teratologic Information Centre (FPH) Slovak Medical University Bratislava Slovak Republic

23. Lombardy Congenital Anomalies Registry Cancer Registry Unit Fondazione IRCCS Istituto Nazionale tumori Milan Italy

24. Omni‐Net for Children International Charitable Fund Rivne Rivne Ukraine

25. Human Genetics Institute Pontificia Universidad Javeriana Bogotá Colombia

26. International Center on Birth Defects International Clearinghouse for Birth Defects Surveillance and Research Rome Italy

Publisher

Wiley

Subject

Pediatrics, Perinatology and Child Health,Epidemiology

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