Facilitating increased participation in clinical trials: what do consumers expect of clinical trial matching websites?-Reference-Cited by-同舟云学术

Facilitating increased participation in clinical trials: what do consumers expect of clinical trial matching websites?

Published:2023-11 Issue:11 Volume:53 Page:2111-2114
ISSN:1444-0903
Container-title:Internal Medicine Journal
language:en
Short-container-title:Internal Medicine Journal

Author:

Gard Grace¹^ORCID,Oakley Joanna¹²,Harold Michael¹,Colyer Duncan³,Benson Wendy²,Gray Katya¹²,Zeps Nik⁴,Gibbs Peter¹

Affiliation:

1. Division of Personalised Oncology Walter and Eliza Hall Institute of Medical Research Melbourne Victoria Australia

2. WEHI Consumer Program Walter and Eliza Hall Institute of Medical Research Melbourne Australia

3. Clinical Research Victorian Comprehensive Cancer Centre Alliance Melbourne Victoria Australia

4. Monash Partners Melbourne Victoria Australia

Abstract

AbstractClinical trials offer access to novel therapies and potential major benefits for patients, but identifying and accessing suitable trials remains a significant challenge for consumers. A burgeoning range of online services aims to meet this need; however, there is a paucity of data on whether these services are addressing the requirements and concerns of consumers. Here, we report our findings from a survey of cancer consumers, with results we believe are relevant to the broader research community.

Publisher

Wiley

Subject

Internal Medicine

Link

https://onlinelibrary.wiley.com/doi/pdf/10.1111/imj.16262

Reference11 articles.

1. Australian Cancer Trials Statistics 2022 [Internet]. Australia: Cancer Australia; c2010 [Cited 5 Nov 2022]. Available from URL:https://www.australiancancertrials.gov.au/search-clinical-trials/search-results.aspx?kw=&t=&s=&p=&ph=&int=&df=&dt=&ps=&fs=&min=&max=&units=&gen=&loc=NSW%2cACT%2cVIC%2cQLD%2cSA%2cWA%2cNT%2cTAS%2c&et=&rs=&page=199&frdet=1

2. Clinical Trial Accrual at Initial Course of Therapy for Cancer and Its Impact on Survival

3. Prevalence, Characteristics, and Publication of Discontinued Randomized Trials

4. A systematic review of discontinued trials suggested that most reasons for recruitment failure were preventable

5. User-Centered Research on Breast Cancer Patient Needs and Preferences of an Internet-Based Clinical Trial Matching System