Enhancing human aspects of care with young people with muscular dystrophy: Results from a participatory qualitative study with clinicians

Author:

Setchell J.1ORCID,Thille P.2,Abrams T.3,McAdam L. C.1,Mistry B.1,Gibson B. E.14

Affiliation:

1. Bloorview Research Institute; Holland Bloorview Kids Rehabilitation Hospital; East York ON Canada

2. The Wilson Centre, University of Toronto/University Health Network; Toronto ON Canada

3. Department of Sociology and Social Anthropology; Dalhousie University; Halifax NS Canada

4. Department of Physical Therapy; University of Toronto; Toronto ON Canada

Funder

AMS Phoenix Project Grant

Bloorview Children's Hospital Foundation Chair in Childhood Disability Studies

Publisher

Wiley

Subject

Public Health, Environmental and Occupational Health,Developmental and Educational Psychology,Pediatrics, Perinatology and Child Health

Reference33 articles.

1. “Wasting precious time”: Young men with Duchenne muscular dystrophy negotiate the transition to adulthood;Abbott;Disability & Society,2014

2. Is everyone upright? Erwin Straus' “The Upright Posture” and disabled phenomenology;Abrams;Human Affairs,2014

3. Putting Gino's lesson to work: Actor-network theory, enacted humanity, and rehabilitation;Abrams;Health (London, England),2016

4. Experiences of being tested: A critical discussion of the knowledge involved and produced in the practice of testing in children's rehabilitation;Bjorbaekmo;Medicine, Health Care, and Philosophy,2011

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