National needs assessment of patients treated at the United States Federally-Funded Hemophilia Treatment Centers-Reference-Cited by-同舟云学术

National needs assessment of patients treated at the United States Federally-Funded Hemophilia Treatment Centers

Author:

Butler R. B.¹,Cheadle A.²,Aschman D. J.³,Riske B.⁴,Senter S.²,McLaughlin K. M.⁵,Young G.⁶,Ahuja S.⁷,Forsberg A. D.³

Affiliation:

1. The Children's Hospital of Philadelphia Hemostasis and Thrombosis Center; Philadelphia PA USA

2. Center for Community Health and Evaluation; Seattle WA USA

3. National Hemophilia Program Coordinating Center; Riverwoods IL USA

4. University of Colorado Hemophilia and Thrombosis Center; Aurora CO USA

5. Maternal and Child Health Bureau; Health Resources and Services Administration; Rockville MD USA

6. Hemostasis and Thrombosis Center; Children's Hospital Los Angeles; University of Southern California Keck School of Medicine; Los Angeles CA USA

7. Rainbow Babies & Children's Hospital; Cleveland OH USA

Funder

Health Resources and Services Administration

Publisher

Wiley

Subject

Genetics (clinical),Hematology,General Medicine

Link

Reference36 articles.

4. Comprehensive care for hemophilia and related inherited bleeding disorders: why it matters;Hoots;Curr Hematol Rep,2003

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;Patient Related Outcome Measures;2019-08