1. Division of Blood Disorders, National Center on Birth Defects and Developmental Disabilities, Centers for Disease Control and Prevention, Atlanta, Georgia, USA
2. Center for Inherited Blood Disorders, Western States Regional Hemophilia Network, Orange, California, USA
3. Los Angeles Orthopaedic Hemophilia Treatment Center, Los Angeles, California, USA
4. Boston Hemophilia Center, Division of Hematology, Department of Medicine, Brigham and Women’s Hospital, Boston, Massachusetts, USA
5. Department of Medicine, Harvard Medical School, Boston, Massachusetts, USA
6. American Thrombosis and Hemostasis Network, Rochester, New York, USA
7. Department of Health Management and Policy, University of Michigan School of Public Health, Ann Arbor, Michigan, USA
8. Hematology Utilization Group Study (HUGS), University of Southern California, Los Angeles, California, USA
9. Patient Reported Outcomes, Burdens and Experiences (PROBE), Washington, DC, USA
10. The Oregon Health & Science University-Portland State University School of Public Health, Portland, Oregon, USA
11. Hemostasis and Thrombosis Program, Children’s National Hospital, Washington, DC, USA
12. Hemophilia Foundation of Southern California, Pasadena, California, USA
13. MSU Center of Bleeding and Clotting Disorders, Department Pediatrics and Human Development, Michigan State University, East Lansing, Michigan, USA
14. Department of Pediatrics, Oregon Health & Science University, Portland, Oregon, USA
15. Mountain States Regional Hemophilia Network, Portland, Oregon, USA
16. National Hemophilia Foundation, New York, New York, USA
17. Rush Hemophilia and Thrombophilia Treatment Center, Rush University Medical Center, Chicago, Illinois, USA
18. Institute for Policy Advancement, Washington, DC, USA
19. Health Sciences, McMaster University, Hamilton, Ontario, Canada
20. Genentech, Phoenix, Arizona, USA
21. University of California San Francisco Hemophilia Treatment Center, University of California San Francisco, San Francisco, California, USA
22. Patient Author, Lived Experience Expert, Chicago, Illinois, USA
23. Department of Pediatrics, University of Colorado School of Medicine, Aurora, Colorado, USA
24. Hemophilia and Thrombosis Center, Division of Hematology, University of Colorado School of Medicine, Aurora, Colorado, USA