Health‐related out‐of‐pocket expenses for children living with rare diseases ‐ tuberous sclerosis and mitochondrial disorders: A prospective pilot study in Australian families-Reference-Cited by-同舟云学术

Health‐related out‐of‐pocket expenses for children living with rare diseases ‐ tuberous sclerosis and mitochondrial disorders: A prospective pilot study in Australian families

Published:2021-10-27 Issue: Volume: Page:
ISSN:1034-4810
Container-title:Journal of Paediatrics and Child Health
language:en
Short-container-title:J Paediatr Child Health

Author:

Deverell Marie¹²³^ORCID,Phu Amy¹²^ORCID,Elliott Elizabeth J¹²^ORCID,Teutsch Suzy M¹²^ORCID,Eslick Guy D¹²^ORCID,Stuart Clare⁴,Murray Sean⁵,Davis Rebecca⁵,Dalkeith Troy¹⁶,Christodoulou John¹⁷⁸^ORCID,Zurynski Yvonne A¹²⁹^ORCID

Affiliation:

1. Faculty of Medicine and Health, Discipline of Child and Adolescent Health The University of Sydney Sydney New South Wales Australia

2. Australian Paediatric Surveillance Unit Kids Research Institute, Sydney Children's Hospitals Network Sydney New South Wales Australia

3. Clinical Excellence Division Government Department of Health Western Australia Perth Western Australia Australia

4. Tuberous Sclerosis Australia Sydney New South Wales Australia

5. Australian Mitochondrial Disorders Foundation Sydney New South Wales Australia

6. The Sydney Children's Hospitals Network Sydney New South Wales Australia

7. Brain and Mitochondrial Research Group Murdoch Children's Research Institute Melbourne Victoria Australia

8. Department of Paediatrics University of Melbourne Melbourne Victoria Australia

9. NHMRC Partnership Centre in Health System Sustainability, Australian Institute of Health Innovation Macquarie University Sydney New South Wales Australia

Funder

Australian Mitochondrial Disease Foundation

National Health and Medical Research Council

Royal Australasian College of Physicians

University of Sydney

Department of Health, Australian Government

Publisher

Wiley

Subject

Pediatrics, Perinatology and Child Health

Link

https://onlinelibrary.wiley.com/doi/pdf/10.1111/jpc.15784

Reference23 articles.

1. Organisation for Economic Co‐operation and Development.Data Health Spending 2017. Available from:https://data.oecd.org/healthres/health-spending.htm[accessed 15 January 2020].

2. Australian Bureau of Statistics.6530.0 – Household Expenditure Survey Australia: Summary of Results 2015–16. Available from:https://www.abs.gov.au/ausstats/abs@.nsf/Latestproducts/6530.0Main%20Features32015-16[accessed 15 January 2020].

3. Out-of-pocket expenditure by Australian seniors with chronic disease: the effect of specific diseases and morbidity clusters

4. LinertováR García‐PérezL GorostizaI.Cost‐of‐Illness in Rare Diseases. In:Posada de la PazM. TaruscioD. GroftS.eds.Rare Diseases Epidemiology: Update and Overview. Advances in Experimental Medicine and Biology 2017; vol1031:283–297.

5. Out-of-pocket healthcare expenditure in Australia: trends, inequalities and the impact on household living standards in a high-income country with a universal health care system

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