Australian children living with rare diseases: health service use and barriers to accessing care-Reference-Cited by-同舟云学术

Australian children living with rare diseases: health service use and barriers to accessing care

Published:2023-01-18 Issue:7 Volume:19 Page:701-709
ISSN:1708-8569
Container-title:World Journal of Pediatrics
language:en
Short-container-title:World J Pediatr

Author:

Teutsch Suzy^ORCID,Zurynski Yvonne^ORCID,Eslick Guy D.^ORCID,Deverell Marie^ORCID,Christodoulou John^ORCID,Leonard Helen^ORCID,Dalkeith Troy,Johnson Sandra L. J.^ORCID,Elliott Elizabeth J.^ORCID

Funder

Australian Research Council

Publisher

Springer Science and Business Media LLC

Subject

Pediatrics, Perinatology and Child Health

Link

https://link.springer.com/content/pdf/10.1007/s12519-022-00675-6.pdf

Reference34 articles.

1. Zurynski Y, Frith K, Leonard H, Elliott E. Rare childhood diseases: how should we respond? Arch Dis Child. 2008;93:1071–4.

2. Anderson M, Elliott EJ, Zurynski YA. Australian families living with rare disease: experiences of diagnosis, health services use and needs for psychosocial support. Orphanet J Rare Dis. 2013;8:22.

3. Elliott EJ, Zurynski YA. Rare diseases are a “common” problem for clinicians. Aust Fam Physician. 2015;44:630–3.

4. Baumbusch J, Mayer S, Sloan-Yip I. Alone in a crowd? Parents of children with rare diseases’ experiences of navigating the healthcare system. J Genet Couns. 2019;28:80–90.

5. The Lancet Child Adolescent Health. Rare diseases: clinical progress but societal stalemate. Lancet Child Adolesc Health. 2020;4:251.

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