Development and initial validation of the Parental PELICAN Questionnaire (PaPEQu) - an instrument to assess parental experiences and needs during their child's end-of-life care-Reference-Cited by-同舟云学术

Development and initial validation of the Parental PELICAN Questionnaire (PaPEQu) - an instrument to assess parental experiences and needs during their child's end-of-life care

Published:2015-08-12 Issue:12 Volume:71 Page:3006-3017
ISSN:0309-2402
Container-title:Journal of Advanced Nursing
language:en
Short-container-title:J Adv Nurs

Author:

Zimmermann Karin¹²,Cignacco Eva¹³,Eskola Katri¹,Engberg Sandra⁴,Ramelet Anne-Sylvie⁵,Von der Weid Nicolas⁶,Bergstraesser Eva⁷

Affiliation:

1. Institute of Nursing Science; University of Basel; Switzerland

2. Department of Paediatrics; Inselspital Bern University Hospital; Switzerland

3. University of Applied Sciences Bern; Health Division; Switzerland

4. School of Nursing; University of Pittsburgh; Pennsylvania USA

5. Institute of Higher Education and Research in Healthcare; University of Lausanne; Switzerland

6. Department of Paediatric Hematology-Oncology; University Children's Hospital UKBB; Basel Switzerland

7. University Children's Hospital Zurich; Switzerland

Funder

The Swiss Cancer League/Swiss Cancer Research

Nursing Science Foundation, Basel

Federal Office of Public Health

Universität Basel

Publisher

Wiley

Subject

General Nursing

Link

http://onlinelibrary.wiley.com/wol1/doi/10.1111/jan.12741/fullpdf

Reference24 articles.

1. Integrative review: parent perspectives on care of their child at the end of life;Aschenbrenner;Journal of Pediatric Nursing,2012

2. Paediatric end-of-life care needs in Switzerland: current practices and perspectives from parents and professionals. A study protocol;Bergstraesser;Journal of Advanced Nursing,2015

3. The initiative for pediatric palliative care: an interdisciplinary educational approach for healthcare professionals;Browning;Journal of Pediatric Nursing,2005

4. Dokken D.L. Heller K.S. Levetown M. Rushton C.H. Fleischman A.R. Truog R.D. Sellers D. Solomon M.Z. for The Initiative for Pediatric Palliative Care (IPPC) 2002 Quality Domains, Goals and Indicators for Family-Centered Care of Children Living with Life-Threatening Conditions (2002 ed.) Newton, MA Education Development Center, Inc.

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