1. Department of Surgical and Medical Sciences for Children and Adults, Internal Medicine Unit University of Modena and Reggio Emilia Modena Italy
2. Section on Gastroenterology and Hepatology Wake Forest University/North Carolina Baptist Medical Center Winston‐Salem NC USA
3. Centre Français des Porphyries Paris France
4. Hospital Clinic Barcelona Barcelona Spain
5. UCSF Liver Center and Porphyria Center, University of California San Francisco CA USA
6. King’s College Hospital London UK
7. Department of Genetics and Genomic Sciences, Icahn School of Medicine at Mount Sinai New York NY USA
8. University of Texas Medical Branch Galveston TX USA
9. University of Utah Salt Lake City UT USA
10. Center for Hematology Massachusetts General Hospital Boston MA USA
11. Instituto Nacional de Pediatría Mexico City Mexico
12. Konkuk University Medical Center Seoul South Korea
13. University of Alberta Hospital Edmonton Canada
14. Alnylam Pharmaceuticals Cambridge MA USA
15. Porphyria Centre Sweden, Centre for Inherited Metabolic Diseases, Karolinska Institutet, Karolinska University Hospital Stockholm Sweden