1. Centre de Référence Maladies Rares Porphyries Colombes France
2. University of Paris Paris France
3. Laboratory of Excellence GR‐Ex Paris France
4. Università degli Studi di Modena e Reggio Emilia Emilia‐Romagna Italy
5. Icahn School of Medicine at Mount Sinai New York NY
6. University of California San Francisco CA
7. King’s College Hospital King’s College London London UK
8. Klinikum Chemnitz Porphyria Center Chemnitz Germany
9. University of Utah Salt Lake City UT
10. University Hospital of Helsinki Helsinki Finland
11. Porphyria Center Center for Lysosomal and Metabolic Disease Department of Internal Medicine Erasmus MC University Medical Center Rotterdam the Netherlands
12. Section on Gastroenterology & Hepatology Wake Forest University/NC Baptist Medical Center Winston‐Salem NC
13. University Hospital of Wales Cardiff UK
14. Stadtspital Triemli Zentrallabor Zurich Switzerland
15. Department of Hemostatic Disorders and Internal Medicine Institute of Hematology and Transfusion Medicine Warsaw Poland
16. 4th Internal Clinic General University Hospital Charles University Prague Czech Republic
17. Fondazione IRCCS, Ca Granda University of Milan Milan Italy
18. Porphyria Centre Sweden, Centre for Inherited Metabolic Diseases Karolinska Institutet, Karolinska University Hospital Stockholm Sweden
19. Norwegian Porphyria Centre Haukeland University Hospital Bergen Norway
20. Clinica Universidad de Navarra Navarra Spain
21. St. Ivan Rilski U Hospital Sofia Bulgaria
22. Alnylam Pharmaceuticals Cambridge MA
23. University of Texas Medical Branch Galveston TX