Impact of mild to severe hemophilia on education and work by US men, women, and caregivers of children with hemophilia B: The Bridging Hemophilia B Experiences, Results and Opportunities into Solutions (B-HERO-S) study-Reference-Cited by-同舟云学术

Impact of mild to severe hemophilia on education and work by US men, women, and caregivers of children with hemophilia B: The Bridging Hemophilia B Experiences, Results and Opportunities into Solutions (B-HERO-S) study

Published:2017-03-20 Issue: Volume:98 Page:18-24
ISSN:0902-4441
Container-title:European Journal of Haematology
language:en
Short-container-title:Eur J Haematol

Author:

Cutter Susan¹,Molter Don²,Dunn Spencer³,Hunter Susan⁴,Peltier Skye⁵,Haugstad Kimberly⁶,Frick Neil⁷,Holot Natalia⁸,Cooper David L.⁸^ORCID

Affiliation:

1. Hospital of the University of Pennsylvania; Philadelphia PA USA

2. Indiana Hemophilia and Thrombosis Center; Indianapolis IN USA

3. Center for Comprehensive Care and Diagnosis of Inherited Bleeding Disorders; Orange CA USA

4. University Hospitals Cleveland Medical Center; Cleveland OH USA

5. Center for Bleeding and Clotting Disorders; University of Minnesota Health; Minneapolis MN USA

6. Hemophilia Federation of America; Washington DC USA

7. National Hemophilia Foundation; New York NY USA

8. Novo Nordisk Inc.; Plainsboro NJ USA

Funder

Novo Nordisk

Publisher

Wiley

Subject

Hematology,General Medicine

Link

http://onlinelibrary.wiley.com/wol1/doi/10.1111/ejh.12851/fullpdf

Reference8 articles.

1. Psychosocial aspects of haemophilia: a systematic review of methodologies and findings;Cassis;Haemophilia,2012

2. Haemophilia Experiences, Results and Opportunities (HERO) Study: survey methodology and population demographics;Forsyth;Haemophilia,2014

3. Associations of quality of life, pain, and self-reported arthritis with age, employment, bleed rate, and utilization of hemophilia treatment center and health care provider services: results in adults with hemophilia in the HERO study;Forsyth;Patient Prefer Adherence,2015

4. Haemophilia Experiences, Results and Opportunities (HERO) study: treatment-related characteristics of the population;Nugent;Haemophilia,2015

5. Unmet needs in the transition to adulthood: 18- to 30-year-old people with hemophilia;Quon;Am J Hematol,2015

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