Access to transplantation for persons with intellectual disability: Strategies for nondiscrimination

Author:

Chen Ashton1,Ahmad Mahwish23ORCID,Flescher Andrew4,Freeman William L.5,Little Stephanie6,Martins Paulo N.7,Veatch Robert M.8,Wightman Aaron9,Ladin Keren10ORCID

Affiliation:

1. Department of Pediatrics Wake Forest University Medical School Winston‐Salem North Carolina USA

2. Center for Bioethics Cleveland Clinic Cleveland Ohio USA

3. Department of Bioethics Case Western Reserve School of Medicine Case Western Reserve University Cleveland Ohio USA

4. Program in Public Health Department of Family, Population, and Preventive Medicine Stony Brook University Stony Brook New York USA

5. Northwest Indian College Lummi Nation Bellingham Washington USA

6. Sanford Health Transplant Center Bismarck North Dakota USA

7. Department of Surgery Division of Transplantation University of Massachusetts Worcester Massachusetts USA

8. Kennedy Institute of Ethics Georgetown University District of Columbia Washington USA

9. Divisions of Nephrology and Bioethics and Palliative Care Department of Pediatrics University of Washington School of Medicine Seattle WA, Washington USA

10. Departments of Occupational Therapy and Community Health Tufts University Medford Massachusetts USA

Funder

Greenwall Foundation

Publisher

Wiley

Subject

Pharmacology (medical),Transplantation,Immunology and Allergy

Reference62 articles.

1. Organ Transplant Discrimination Against People with Disabilities.2019.https://ncd.gov/sites/default/files/NCD_Organ_Transplant_508.pdf. Accessed September 25 2019.

2. Health Care At The Crossroads: Strategies for Narrowing the Organ Donation Gap and Protecting Patients.2004;https://www.jointcommission.org/assets/1/18/organ_donation_white_paper.pdf.

3. Psychosocial Evaluation of Organ Transplant Candidates

4. Use of neurodevelopmental delay in pediatric solid organ transplant listing decisions: Inconsistencies in standards across major pediatric transplant centers

5. BernsteinL.People with autism intellectual disabilities fight bias in transplants. The Washington Post 2017.

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2. Temporal trends and regional variation of heart transplantation in children with intellectual and developmental disabilities;Pediatric Transplantation;2023-10-16

3. The Ethics of Transplantation;Textbook of Transplantation and Mechanical Support for End‐Stage Heart and Lung Disease;2023-09-08

4. TheLVADPatient Bridging to Wellness: Psychological Assessment and Rehabilitation;Textbook of Transplantation and Mechanical Support for End‐Stage Heart and Lung Disease;2023-09-08

5. Towards equity in paediatric liver transplantation: improving access and long-term outcomes;The Lancet Gastroenterology & Hepatology;2023-07

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