1. Department of Medicine; Division Hematology Oncology; University of Pittsburgh; Pittsburgh PA USA
2. Division of Hematology-Oncology; Boston Children's Hospital; Harvard Medical School; Boston MA USA
3. Italian Association of Haemophilia Centers; Florence Italy
4. Department of Pediatric Hematology; Erasmus University Medical Center-Sophia Children's Hospital; Rotterdam the Netherlands
5. Department of Health Research, Methods, Evidence and Impact, and Department of Medicine; McMaster University; Hamilton ON Canada