Living with a genetic, undiagnosed or rare disease: A longitudinal journalling study through the COVID‐19 pandemic-Reference-Cited by-同舟云学术

Living with a genetic, undiagnosed or rare disease: A longitudinal journalling study through the COVID‐19 pandemic

Author:

Byun Malia¹,Feller Hollie²,Ferrie Monica²,Best Stephanie³⁴^ORCID

Affiliation:

1. California Lutheran University California USA

2. Genetic Support Network Victoria Melbourne Victoria Australia

3. Australian Genomics Health Alliance Murdoch Childrens Research Institute Melbourne Australia

4. Australian Institute of Health Innovation Sydney Australia

Funder

Department of Health, State Government of Victoria

National Health and Medical Research Council

Publisher

Wiley

Subject

Public Health, Environmental and Occupational Health

Link

Reference38 articles.

1. Rare diseases are a ‘common’ problem for clinicians;Elliott E;Aust Fam Physician,2015

3. Orphanet. About rare diseases2021. Accessed June 27 2019.www.orpha.net/consor/cgi-bin/Education_AboutRareDiseases.%0Aphp?lng=EN

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