Living with rare genetic disease during the COVID-19 pandemic: A qualitative study of adolescents and young adults with Li-Fraumeni syndrome-Reference-Cited by-同舟云学术

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Living with rare genetic disease during the COVID-19 pandemic: A qualitative study of adolescents and young adults with Li-Fraumeni syndrome

Published:2024 Issue: Volume:2 Page:100034
ISSN:2950-0087
Container-title:Rare
language:en
Short-container-title:Rare

Author:

Werner-Lin Allison,Khincha Payal P.,Thompson Ashley S.,Rising Camella,Sleight Alix,Wilsnack Catherine,Boyd Patrick,Feldman Alexandra,Shepherd Rowan Forbes,Savage Sharon A.

Publisher

Elsevier BV

Reference59 articles.

1. Cancer screening tests and cancer diagnoses during the COVID-19 pandemic;Bakouny;JAMA Oncol.,2021

2. Delays and disruptions in cancer health care due to COVID-19 pandemic: systematic review;Riera;JCO Glob. Oncol.,2021

3. Research and management of rare diseases in the COVID-19 pandemic era: challenges and countermeasures;Chowdhury;Front Public Health,2021

4. "It seems like COVID-19 now is the only disease present on Earth": living with a rare or undiagnosed disease during the COVID-19 pandemic;Halley;Genet. Med.,2021

5. Impact of the COVID-19 pandemic on health care and daily life of patients with rare diseases from the perspective of patient organizations - a qualitative interview study;Zybarth;Orphanet J. Rare Dis.,2023

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