Degree of autonomy in making independent choices by frail older people with intellectual disabilities in a care home: A descriptive ethnographic study-Reference-Cited by-同舟云学术

Degree of autonomy in making independent choices by frail older people with intellectual disabilities in a care home: A descriptive ethnographic study

Published:2023-04-12 Issue:4 Volume:36 Page:812-821
ISSN:1360-2322
Container-title:Journal of Applied Research in Intellectual Disabilities
language:en
Short-container-title:Research Intellect Disabil

Author:

Noorlandt Hanna W.¹^ORCID,Korfage Ida J.¹,van der Sar Lisa J.¹,Felet Freek M. A. J.²,Tuffrey‐Wijne Irene³^ORCID,van der Heide Agnes¹,Echteld Michael A.⁴⁵

Affiliation:

1. Department of Public Health Erasmus MC, University Medical Center Rotterdam Rotterdam The Netherlands

2. Expert by Experience Breda The Netherlands

3. Faculty of Health, Social Care and Education, Kingston University & St. George's University of London Cranmer Terrace London SW17 ORE UK

4. Avans University of Applied Science Expertise Centre Caring Society Breda The Netherlands

5. Palliative care project director Prisma Foundation Waalwijk The Netherlands

Abstract

AbstractBackgroundWe aimed to gain more insight into autonomy of older people with intellectual disabilities in a residential care facility in making choices.MethodsWe performed a descriptive ethnographic study in a residential facility in the Netherlands for 22 persons, aged 54–89 years, with mild to moderate intellectual disabilities (IQ <70) and low social–emotional development levels. We combined participant observations and qualitative interviews.ResultsBased on the observations, the main themes for the interviews were established. Residents indicated to be free to make independent choices, and experienced less autonomy with regard to health issues and finances. Support staff stated that residents' level of autonomy depends on residents' characteristics, needs, preferences, the attitude of support staff and the rules of the care institution.ConclusionResidents had a clear view on their autonomy in making independent choices. Support staff is mindful of preserving residents' autonomy, which in practice is limited.

Publisher

Wiley

Subject

Developmental and Educational Psychology,Education

Link

https://onlinelibrary.wiley.com/doi/pdf/10.1111/jar.13097

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