Psychosocial impact on families with an infant with a hypoplastic left heart syndrome during and after the interstage monitoring period - a prospective mixed-method study-Reference-Cited by-同舟云学术

Psychosocial impact on families with an infant with a hypoplastic left heart syndrome during and after the interstage monitoring period - a prospective mixed-method study

Published:2017-02-14 Issue:21-22 Volume:26 Page:3363-3370
ISSN:0962-1067
Container-title:Journal of Clinical Nursing
language:en
Short-container-title:J Clin Nurs

Author:

Stoffel Gaby¹²,Spirig Rebecca³,Stiasny Brian¹²,Bernet Vera²⁴,Dave Hitendu²⁵,Knirsch Walter¹²

Affiliation:

1. Division of Cardiology; Pediatric Heart Center; University Children's Hospital; Zurich Switzerland

2. Children's Research Center; University Children's Hospital; Zurich Switzerland

3. Nursing and MTTB; University Hospital Zürich and Institute of Nursing Science; University of Basel; Basel Switzerland

4. Division of Neonatology and Intensive Care; Pediatric Heart Center; University Children's Hospital; Zurich Switzerland

5. Division of Cardiovascular Surgery; Pediatric Heart Center; University Children's Hospital; Zurich Switzerland

Funder

Anna Müller Grocholski Foundation

Publisher

Wiley

Subject

General Medicine,General Nursing

Link

http://onlinelibrary.wiley.com/wol1/doi/10.1111/jocn.13694/fullpdf

Reference28 articles.

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2. Quality of life among parents of children with heart disease;Arafa;Health and Quality of Life Outcomes,2008

3. Hypoplastic left heart syndrome;Barron;Lancet,2009

4. Validating the SF-36 health survey questionnaire: new outcome measure for primary care;Brazier;British Medical Journal,1992

5. Psychosocial outcomes for preschool children and families after surgery for complex congenital heart disease;Brosig;Pediatric Cardiology,2007

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1. Achieving an Optimal Outcome After Stage 1 Palliation for Hypoplastic Left Heart Syndrome and Variants: Frequency, Associated Factors, and Subsequent Outcomes;Journal of the American Heart Association;2024-06-18

2. Systematic Review of Instruments Assessing Psychosocial Adaptation and Outcomes Among Families of Children With Congenital Heart Disease;Journal of Pediatric Psychology;2023-05-23

3. Experiences of parents of children with hypoplastic left heart syndrome during their treatment: a qualitative study;Cardiology in the Young;2023-04-03

4. The Experience of Uncertainty in Mothers Caring for Children at Home after Palliative Heart Surgery;Indian Journal of Palliative Care;2023-01-20

5. Utilizing technology to expand home monitoring to high-risk infants with CHD;Cardiology in the Young;2022-07-15