Setting a patient-centered research agenda for cerebral palsy: a participatory action research initiative

Author:

Gross Paul H1ORCID,Bailes Amy F2ORCID,Horn Susan D1,Hurvitz Edward A3,Kean Jacob1,Shusterman Michele4,

Affiliation:

1. Department of Population Health Sciences; University of Utah; Salt Lake City UT USA

2. Division of Occupational Physical Therapy; Cincinnati Children's Hospital and Medical Center; Cincinnati OH USA

3. Department of Physical Medicine and Rehabilitation; University of Michigan; Ann Arbor MI USA

4. CP NOW; Greenville SC USA

Funder

Cerebral Palsy Alliance Research Foundation

Patient-Centered Outcomes Research Institute

Publisher

Wiley

Subject

Neurology (clinical),Developmental Neuroscience,Pediatrics, Perinatology and Child Health

Reference22 articles.

1. A report: the definition and classification of cerebral palsy April 2006;Rosenbaum;Dev Med Child Neurol Suppl,2007

2. Cerebral palsy research funding from the National Institutes of Health, 2001 to 2013;Wu;Dev Med Child Neurol,2015

3. Gross P Shusterman M Patient and family perspectives on common CP therapies and interventions

4. The Patient-Centered Outcomes Research Institute (PCORI) national priorities for research and initial research agenda;Selby;JAMA,2012

5. Why it is crucial to involve families in all stages of childhood disability research;Morris;Dev Med Child Neurol,2011

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