School participation among young people with craniofacial microsomia and other childhood‐onset disabilities

Author:

Kaelin Vera C.12ORCID,Anaby Dana34ORCID,Werler Martha M.5ORCID,Khetani Mary A.14ORCID

Affiliation:

1. Occupational Therapy University of Illinois Chicago Chicago USA

2. Computer Science University of Illinois Chicago Chicago USA

3. School of Physical and Occupational Therapy McGill University Montreal Canada

4. CanChild Centre for Childhood Disability Research McMaster University Hamilton Canada

5. Epidemiology Boston University Boston USA

Abstract

AbstractAimTo examine how school environment, physical functioning problems, and behavioral problems explain levels of school participation (i.e. attendance and involvement) among young people with craniofacial microsomia (CFM) and other childhood‐onset disabilities, and whether participation‐focused caregiver strategies play a role in these relationships.MethodWe conducted secondary analyses of a subset of data (n = 260 families: 120 with CFM and 140 with other childhood‐onset disabilities) from the second follow‐up phase of a longitudinal cohort study. We applied structural equation modeling with data collected from the Participation and Environment Measure – Children and Youth version, the Child Behavior Checklist, and the Pediatric Quality of Life Inventory physical functioning scale.ResultsModel fit was acceptable to close (comparative fit index = 0.973; root mean square error of approximation = 0.055; standardized root mean squared residual = 0.043; Tucker–Lewis index = 0.958). School environmental support had a positive effect on young people's participation attendance and involvement, and physical functioning problems had a negative effect on participation involvement. The number of disclosed caregiver strategies had a significant positive effect on the relationship between school environmental support and school participation attendance.InterpretationFindings confirm the effect of school environmental support and physical functioning problems on school participation and highlight the role of participation‐focused caregiver strategies to intensify the positive effect of school environmental support on school participation attendance.

Funder

National Institute of Dental and Craniofacial Research

National Institute on Disability, Independent Living, and Rehabilitation Research

Publisher

Wiley

Subject

Neurology (clinical),Developmental Neuroscience,Pediatrics, Perinatology and Child Health

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