Medical students' knowledge and opinions about rare diseases: A case study from Poland
Author:
Affiliation:
1. Department of Social Sciences and Humanities, Poznan University of Medical Sciences, Poznań, Poland.
2. Department of Organization and Management in Health Care, Poznan University of Medical Sciences, Poznań, Poland.
Publisher
International Research and Cooperation Association for Bio & Socio-Sciences Advancement (IRCA-BSSA)
Subject
General Medicine
Link
https://www.jstage.jst.go.jp/article/irdr/8/4/8_2019.01099/_pdf
Reference34 articles.
1. 1. Richter T, Nestler-Parr S, Babela R, Khan ZM, Tesoro T, Molsen E, Hughes DA; International Society for Pharmacoeconomics and Outcomes Research Rare Disease Special Interest Group. Rare disease terminology and definitions – A systematic global review: Report of the ISPOR Rare Disease Special Interest Group. Value Health. 2015; 18:906-914.
2. 2. Orphanet. 2019. http://www.orpha.net/ (accessed February 2, 2019).
3. 3. Moliner AM, Waligora J. The European Union Policy in the Field of Rare Diseases. In: Rare Diseases Epidemiology: Update and Overview (Posada de la Paz M, Taruscio D, Groft SC, eds.). Springer, New York, US, 2017; pp. 561-587.
4. 4. Council of the European Union. Council Recommendation of 8 June 2009 on an action in the field of rare diseases (2009/C 151/02) 2009. https://eur-lex.europa.eu/LexUriServ/LexUriServ.do?uri=OJ:C:2009:151:0007:0010:EN:PDF (accessed February 6, 2019).
5. 5. Schieppati A, Henter JI, Daina E, Aperia A. Why rare diseases are an important medical and social issue. Lancet. 2008; 371:2039-2041.
Cited by 48 articles. 订阅此论文施引文献 订阅此论文施引文献,注册后可以免费订阅5篇论文的施引文献,订阅后可以查看论文全部施引文献
1. Rare disease diagnosis using knowledge guided retrieval augmentation for ChatGPT;Journal of Biomedical Informatics;2024-09
2. Hemşirelerin Nadir Hastalıklar Konusundaki Bilgi ve Farkındalıkları;Artuklu Health;2024-08-30
3. Rare disease 101: an online resource teaching on over 7000 rare diseases in one short course;Orphanet Journal of Rare Diseases;2024-07-22
4. Diagnosis of alpha-Mannosidosis: Practical approaches to reducing diagnostic delays in this ultra-rare disease;Molecular Genetics and Metabolism;2024-05
5. Enhancing clinical sense in rare disease diagnosis: a cloud computing collaboration approach using google workspace;International Journal of Surgery: Global Health;2024-05
1.学者识别学者识别
2.学术分析学术分析
3.人才评估人才评估
"同舟云学术"是以全球学者为主线,采集、加工和组织学术论文而形成的新型学术文献查询和分析系统,可以对全球学者进行文献检索和人才价值评估。用户可以通过关注某些学科领域的顶尖人物而持续追踪该领域的学科进展和研究前沿。经过近期的数据扩容,当前同舟云学术共收录了国内外主流学术期刊6万余种,收集的期刊论文及会议论文总量共计约1.5亿篇,并以每天添加12000余篇中外论文的速度递增。我们也可以为用户提供个性化、定制化的学者数据。欢迎来电咨询!咨询电话:010-8811{复制后删除}0370
www.globalauthorid.com
TOP
Copyright © 2019-2024 北京同舟云网络信息技术有限公司 京公网安备11010802033243号 京ICP备18003416号-3